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  • GBS-chance of recurrence - GBS|CIDP Foundation International Forums
    I had GBS – Miller Fisher Variant in 1997 when I was a teenager, we don’t know what caused my GBS it was either infection or vaccine since both happened at that time Would it still be very rare to get GBS a second time around with this medicine, or would I be “playing with fire” in this case?
  • Average time for full recovery? - GBS\|CIDP
    So anything is possible There may be an average period of recovery of the motor nerves for GBS sufferers which is less than 2 years, but for muscle recovery, I think that the average recovery for those who had severe GBS, the average recovery period must be several years
  • Community Forums - GBS|CIDP Foundation International Forums
    A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
  • For those who get regular IVIG infusions, how often do you . . . - GBS\|CIDP
    Just out of curiosity, for those who get regular IVIG treatments for their CIDP, how often do you get them? Once a week, once a month? Do you feel that such a maintenance keeps symptom free or something close to it? Thanks, Bryan
  • Elevated Blood Pressure and Heart Rate after IVIG - GBS|CIDP Foundation . . .
    Hello, Two weeks ago I received my first 3 IVIG loading doses for CIDP Although many of my symptoms have improved I have noticed that my heart rate and blood pressure are up from my longterm normal Can anyone tell me if this is something I should worry about or will it go away after a while? Thanks for your help, Petra
  • electric muscle stimulation? - GBS|CIDP Foundation International Forums
    It is true that there are physical therapists (and others) who are in the business of selling all kinds of devices (and will happily sell it to you), including one that straps over your peroneal nerve This type is often touted as the solution for foot drop However, it is probably not useful for a true CIDP patient Why? With CIDP you have probably lost the outer layer that protects your
  • GBS: How do adult patients feel during recovery?
    How do the GBS patients compensate for the numb fingers? My DH’s body coordination balance is improving slowly as he learns to feel his muscles (legs are still numb), but his fingers are much harder to control He works on the computer mostly at his work, so I wonder how he could improve it when he needs to go back to work
  • Axonal Guillan Barre (AMAN) - GBS\|CIDP
    Hello! I’m reaching out to the few of us that have been diagnosed with the AMAN form of Guillan Barre (Acute Axonal Motor Neuropathy ) I say the “few of us” because from what I know, we are the exceedingly rare form of Guillan Barre… perhaps 3,000 cases world-wide and most of them are in Asia The viral nervous system damage we suffered is due to an attack on our actual nerves (axons
  • CIDP and Alcohol - GBS|CIDP Foundation International Forums
    Not me I have been treated regularly for 18 years, drink about 1 ounce alcohol most every day and so far no effects to my CIDP
  • I need help understanding EMG NCS results. - GBS\|CIDP
    Stacy, WOW! You have alot going on! Are you invested in Calgon?!:D In my opinion, you really need to have your dr go over the results with you There is a site that can give you information on reading emg ncv results-goodsearch it, I found it under absent f waves I think It might give you some information, maybe enough to give you an idea of what questions to ask your dr You are in My





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